Author Topic: Childhood Brain Tumor  (Read 13316 times)

Offline johnnyYTED

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Re: Childhood Brain Tumor
« Reply #25 on: September 23, 2016, 08:37:18 PM »
 :dred11
thats good to hear the progress Pete, ++
 I hope they find  a lot of helpful info to help Immy and other sufferers . I'll keep Immy in my thoughts
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Offline Sicman

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Re: Childhood Brain Tumor
« Reply #26 on: September 23, 2016, 09:58:13 PM »
Still praying for her, Mate  :wink1
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Offline StinkyPete

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Re: Childhood Brain Tumor
« Reply #27 on: January 13, 2017, 03:15:46 PM »
Here's the latest information from Imogen's Dad, who this week received some preliminary results on the DNA sequencing.   Thanks again to all those who donated to enable this important test to be carried out.

DNA Sequencing results.
Today I was able to speak with Dr Dan Thomas, the Professor overseeing the sequencing at Stanford Uni. He is an Adelaide lad, and is currently back here in Adelaide, and is getting married this Sunday.
We are all catching up in a few weeks time, but over the phone he was able to give me the initial results.
The good news is that the relapse tumour sample doesn't have the amount of gene mutations he would expect to see (around 50), and doesn't seem to have the bad, or rapidly developing mutations he would have expected with this sort of cancer.
This means that a relapse is not certain, and she may well not have any more tumours grow.
The bad news is that from the mutations they can see, there are no non-toxic agents that are currently available that could be used to block the genes if she does have a relapse.
Ill post more details after we meet with him, but it is positive, and encouraging news that there is every reason to be confident that she will remain clear of another relapse.
I know many of you continue to pray with us that she remains in remission!


Imogen has been positive throughout this whole process of diagnosis/surgery/chemo etc etc

Thanks everyone   :Blow
« Last Edit: January 13, 2017, 03:19:04 PM by StinkyPete »
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Re: Childhood Brain Tumor
« Reply #28 on: January 13, 2017, 03:21:54 PM »
That's great news Pete. :clap :clap :clap :clap : ++ ++ ++

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Offline ppopeye

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Re: Childhood Brain Tumor
« Reply #29 on: January 13, 2017, 03:53:44 PM »
 We agree. That is good news for Imogen and for her family. May the news continue to be positive, and she stays positive.


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Re: Childhood Brain Tumor
« Reply #30 on: January 13, 2017, 04:32:43 PM »
Good to hear Pete  :thumbs
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Offline Jdbiker

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Re: Childhood Brain Tumor
« Reply #31 on: January 13, 2017, 06:23:01 PM »
Great news Pete :thumbs
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Offline johnnyYTED

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Re: Childhood Brain Tumor
« Reply #32 on: January 13, 2017, 10:18:52 PM »
 :dred11
Pete thanks for the update,, its sounding really good. I hope that it stays that way for Imogen and she long healthy happy future..  :thumbsup
Must be a relief for  you and the family..
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Re: Childhood Brain Tumor
« Reply #33 on: January 14, 2017, 07:59:06 AM »
 :clap :clap :clap :clap :thumbsup :thumbs :like
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Re: Childhood Brain Tumor
« Reply #34 on: January 14, 2017, 09:24:50 AM »
Great news!  Amazing too, that the Doc connects back to Adelaide- what are the chances of that?
With the rapid advances in medicine, it's possible there will be non-toxic agents available in the future for the specific condition, but we trust they won't be needed.
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Offline StinkyPete

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Re: Childhood Brain Tumor
« Reply #35 on: February 01, 2017, 02:17:45 PM »
Imogen had another scheduled scan early this week, and here's the results from her Dad.  We could not have received better news.   :thumb

MRI scan results
The scan is all clear. Both the brain and full spine are clear of tumours still.
We'll wait to hear if the next scan will be in 3 or 6 months time.
Thanks again for your love and prayers. I know how much this good news means to you all as well!
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Re: Childhood Brain Tumor
« Reply #36 on: February 01, 2017, 02:31:45 PM »
That's great news Pete and hoping there will be many happy birtdays for her to look forward to. :Blow :Blow

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Offline Jdbiker

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Re: Childhood Brain Tumor
« Reply #37 on: February 01, 2017, 03:09:27 PM »
Great news Pete :thumbs
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Offline ppopeye

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Re: Childhood Brain Tumor
« Reply #38 on: February 01, 2017, 03:25:10 PM »
Great news Pete.


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Re: Childhood Brain Tumor
« Reply #39 on: February 01, 2017, 03:57:16 PM »
FANTASTIC news Pete
 

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Re: Childhood Brain Tumor
« Reply #40 on: February 01, 2017, 04:07:20 PM »
Excellent!
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Offline Bloodman

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Re: Childhood Brain Tumor
« Reply #41 on: February 01, 2017, 04:46:55 PM »
Fantastic news.  :runyay

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Re: Childhood Brain Tumor
« Reply #42 on: February 01, 2017, 05:06:14 PM »
AWESOME   :hatwave :runyay
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Offline richo

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Re: Childhood Brain Tumor
« Reply #43 on: February 01, 2017, 05:33:51 PM »
Fantastic news. 
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Offline johnnyYTED

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Re: Childhood Brain Tumor
« Reply #44 on: February 01, 2017, 10:55:34 PM »
 :dred11

Thats great Pete, so glad Imogen is doing so well. I reckon her Dad must be feeling over the moon.  :clap
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Re: Childhood Brain Tumor
« Reply #45 on: February 02, 2017, 08:17:59 AM »
 :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay :runyay

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Offline Sicman

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Re: Childhood Brain Tumor
« Reply #46 on: February 02, 2017, 08:22:40 AM »
 :clap :clap :clap :clap :thumbsup :thumbs Bonza news Pete
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Offline ST2UP

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Re: Childhood Brain Tumor
« Reply #47 on: February 02, 2017, 08:38:33 AM »
Bloody great news.... You rock Imogen  :rockon  :hatwave
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Offline StinkyPete

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Re: Childhood Brain Tumor
« Reply #48 on: April 22, 2017, 04:13:45 PM »
Imogen's latest scheduled three month scan shows that there is still no sign of cancer.   This is very good news indeed, and it is anticipated that her scheduled scans will now go out six months.   :thumbsup
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Re: Childhood Brain Tumor
« Reply #49 on: April 22, 2017, 04:26:03 PM »
Great news, Pete!  :hatwave
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