Author Topic: Childhood Brain Tumor (Read 18530 times)

StinkyPete · « **on:** June 23, 2016, 12:11:28 PM »

Hi all,
My grandniece Imogen has been battling a brain tumor for the last two years. She has endured, brain surgery, a horrible bout of aggressive chemotherapy that left her with one foot in the grave, and a further brain surgery when the cancer returned. The tumor is back again, and treatment options are very limited. One avenue being explored is to send a biopsy of the tumor the the USA where DNA analysis can be undertaken to search for vulnerabilities in the tumor. My niece and her husband, and this vibrant little girl need all the help they can get, and I would encourage you to make a donation via the listed web site towards the $6,000 needed to have the DNA sequencing undertaken.

https://www.youcaring.com/the-blenkinsop-family-589951

In addition to any donation that you can offer, I would ask for your prayers for Imogen, and for wisdom and insight for her medical team.

Sicman · « **Reply #1 on:** June 23, 2016, 12:51:24 PM »

Prayers - Done

Donation -Done

Shared on FB - Done

We can win this fight

Pocket STocker · « **Reply #2 on:** June 23, 2016, 07:23:15 PM »

Happy to help Pete. We wish Imogen and her family all the best thoughts.

Pockey

johnnyYTED · « **Reply #3 on:** June 24, 2016, 09:29:50 AM »

Pete I hope Immy's fundraising is successful
Donation done and shared on facebook

26 June re-shared again on Facebook, I will keep it circulating..

Brock · « **Reply #4 on:** June 24, 2016, 12:54:06 PM »

A donation sent.

ppopeye · « **Reply #5 on:** June 25, 2016, 11:17:24 PM »

Happy to help Pete. our thoughts and prayers are with Imogen and your family. Its a tough time for you all at the moment. Hopefully you get some good answers for Imogen from the biopsy tests.

Sent from my iPad

Carsten · « **Reply #6 on:** June 26, 2016, 12:28:06 AM »

Will donate this afternoon. All the best.

StinkyPete · « **Reply #7 on:** June 26, 2016, 09:35:54 AM »

Thankyou so much to all those who have generously made donations to help our little Immy. As of this morning, just over half of the needed funds have been raised. Cancer is such an insidious disease, and childhood brain cancers are the cruelest of all. Our hope is that your donations may help to save her, and will add to the body of knowledge which will eventually cure this scourge.

NTRebel · « **Reply #8 on:** June 26, 2016, 11:02:37 AM »

Donation made hope everything works out,

StinkyPete · « **Reply #9 on:** June 29, 2016, 04:01:48 PM »

The $6,000 needed has now been raised, thanks to the generosity of family, friends and strangers who became aware of Immy's need. Thanks to the OzSTOC family for supporting this cause, and your generosity has been bought to the attention of Imogen's family, who are grateful beyond what words can express.

johnnyYTED · « **Reply #10 on:** June 29, 2016, 04:33:41 PM »

that's great Pete, I hope Imogen can get the tests done quickly and hopefully lead to successful treatment.

Sicman · « **Reply #11 on:** June 30, 2016, 06:08:27 PM »

StinkyPete · « **Reply #12 on:** July 27, 2016, 12:36:24 PM »

Following a routine MRI scan early last week, Imogen and her family have has some wonderful news today, and I quote from her Dad's Facebook page....

"No evidence of disease...
The MRI scan results are clear. There are no tumours growing, and the surgical site from the last operation is clear.
It's such a relief to hear the words from the surgeon 'it's all clear'. It's indescribable - in a good way.
Her next MRI scan will be in October, and if that remains clear the scans will spread out to every 6 months.
Again- thanks to each of you for your prayers, love and support."

Thankyou again to the OzSTOC family for pitching in, and the DNA profiling of her tumor will occur soon.

NTRebel · « **Reply #13 on:** July 27, 2016, 01:14:09 PM »

That's great Pete hope the good news is continuous for the rest of her life.

Wild Rose · « **Reply #14 on:** July 27, 2016, 01:55:03 PM »

Great news Pete

ppopeye · « **Reply #15 on:** July 27, 2016, 02:41:27 PM »

That is such good news. It must be a great relief to everyone. May the scans remain clear in the future.

Jdbiker · « **Reply #16 on:** July 27, 2016, 05:33:49 PM »

Great news Pete

ST2UP · « **Reply #17 on:** July 27, 2016, 05:46:18 PM »

Oh yeah !!! Just the best news for all concerned

Kev Murphy · « **Reply #18 on:** July 28, 2016, 11:34:54 PM »

richo · « **Reply #19 on:** July 29, 2016, 06:51:17 AM »

. Great news

PC · « **Reply #20 on:** July 29, 2016, 06:16:03 PM »

. AWSOME NEWS

Sicman · « **Reply #21 on:** July 29, 2016, 09:31:54 PM »

Very cool what the Big Fella can do when we ask

Excellent news

StinkyPete · « **Reply #22 on:** September 23, 2016, 10:55:56 AM »

Here's the latest from Imogen's Dad, for the information of those who kindly and generously donated to the DNA Sequencing Fund.....

Sept 14th
The sequencing is going ahead. Today i signed the authorisation papers, and in the next few days we'll be transferring the funds, which will be just over Aust$6000. The samples will be sent to the US, and the sequencing will then take place.
Dan Thomas - the Professor at Stanford who has made it all happen, wrote this in an email to me today:
'What will we get from these tests? We will have new treatment options if she relapses and perhaps some to help us prevent future relapse - and lots of new information to help hundreds of children with medulloblastomas in the future. This information will be given to Dr Michael Taylor, world expert on Medulloblastoma. This will be the 25th relapsed medulloblastoma ever sequenced.'
Again - thanks so much to those of you who were able to support us financially to raise the funds to enable this to occur. Ill continue to keep you informed each step of the way.

Sept 23rd
The sample has been sent to Stanford Uni, and now we wait to see what results they find through the sequencing. This will take up to a few weeks.
Please pray that as a result of this process they discover something that will help Immy, and be of benefit to other children with this specific cancer.......
.......Thanks again for your support and prayers that the sequencing will give us good results.

NTRebel · « **Reply #23 on:** September 23, 2016, 01:44:10 PM »

Good to hear everything is working towards a result

.

paul

Jdbiker · « **Reply #24 on:** September 23, 2016, 05:25:03 PM »

Great news Peter

News:

Author Topic: Childhood Brain Tumor (Read 18530 times)